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What Does Advance Care Planning Mean for People with Dementia?

Advance care planning is important for everyone, especially for those living with dementia.  Advance care planning is more than end-of-life care decisions. As people travel on their dementia journey, there are multiple crossroads that involve decisions. Should a person with moderate to severe dementia continue to have colonoscopies and mammograms? […]

The 3 Questions Every Dementia Caregiver Should Ask Clinicians: Starting the Palliative Care Conversation

We described palliative care as “aggressive symptom management for maximum quality of life at the present time.” The goal is to treat and remove, or reduce, symptoms that are bothering the person who is deeply forgetful.  Symptoms such as pain, or problems like urinary tract infections, are handled in ways that make sense to the person living in Dementia Land.

Refusing Treatment for Someone with Dementia: Caregiver Knows Best (The Secret of Palliative Care)

Palliative care can include “end-of-life” or hospice care, but this narrow and incorrect understanding of palliative care restricts opportunities for important advanced care planning conversations to occur early in the disease process—AND TO INVOLVE THE PERSON WHO IS NOT QUITE YET DEEPLY FORGETFUL.

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