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Is my spouse turning into a jerk or is it dementia?

Frontotemporal Dementia & The Jerk Factor When I say “dementia,” most people think “Alzheimer’s Disease.” The truth is that in people under 65, the more common dementia is “frontotemporal dementia” for FTD. FTD refers to a spectrum of neurodegenerative diseases that include behavioral, motor, and/or speech symptoms. The one I am talking […]

Wish list for the caregiver?

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The National Institutes of Health just released a paper on the needs of the caregiver “workforce.” Here are some highlights from the report: Today family caregivers provide 80% of the care for persons with dementia. 16 million informal caregivers provide approximately 18 billion hours of unpaid care to persons with […]

Frontotemporal Dementia Caregiving Costs More than AD Caregiving

The combined indirect and direct care costs associated with FTD averaged $120K annually, compared to the average annual indirect and direct care costs of caregiving for AD, $64K. Flexible work schedules and pre-tax health savings accounts for caregiving expenses are two ideas that would make life better for family caregivers. 

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